Validation of the Czech version of the NPCS scale for the evaluation of the needs of patients with progressive neurological disease

Czech version

Authors: R. Bužgová; R. Kozáková
Authors‘ workplace: Ústav ošetřovatelství a porodní asistence, LF OU, Ostrava
Published in: Cesk Slov Neurol N 2021; 84/117(1): 59-65
Category: Original Paper
doi: https://doi.org/10.48095/cccsnn202159

Overview

Aim: The aim of the research was to create and verify the psychometric features of the Czech version of the The Needs and Provision Complexity Scale (NPCS). Furthermore, the aim was to determine the unmet needs for the care for patients with progressive neurological disease.

Patients and methods: The research sample included 334 patients with progressive neurological disease. The scale was translated based on standard methods. To assess the psychometric features, the exploratory factor analysis was used together with retest reliability and correlation analysis.

Results: Based on the exploratory factor analysis, the two-factor model was confirmed – 1. needs of health- and personal-care; and 2. needs of social care and support (χ² = 1,856.262; P < 0.001). The reliability of the scale (a = 0.684–0.712) and retest reliability (r = 0.707–0.953) were evaluated as satisfactory. Some unmet needs were identified in patients, most often in rehabilitation (87%).

Conclusion: The Czech version of the NPCS scale may be used both in clinical practice as well as in research.

Keywords:

Quality of life – needs – unmet needs – progressive neurological disease

Sources

1. Robinson PL, Russell A, Dysch L. Third-wave therapies for long-term neurological conditions: a systematic review to evaluate the status and quality of evidence. Brain Impairment 2019; 20 (1): 58–80. doi: 10.1017/Brlmp.2019.2.

2. Calvert M, Pall H, Hoppitt T et al. Health-related quality of life and supportive care in patients with rare long-term neurological conditions. Qual Life Res 2013; 22 (6): 1231–1238. doi: 10.1007/s11136-012-0269-5.

3. Zvoníková A. Roztroušená skleróza a posuzování zdravotního stavu, pracovní schopnosti a invalidity. Reviz posud lék 2019; 22 (3): 71–74.

4. Turner-Stokes L, Mc Crone P, Jackson DM et al. The Needs and Provision Complexity Scale: a multicentre prospective cohort analysis of met and unmet needs and their cost implications for patients with complex neurological disability. BMJ open 2013; 3 (2): e222353. doi: 10.1136/bmjopen-2012-002353.

5. Holmoy AK, Johannessen CH, Hope S et al. Uncovering health and social care needs among myotonic dystrophy patients. Acta Neurol Scand 2019; 139 (6): 526–532. doi: 10.1111/ane.13086.

6. Van Walsem, MR, Howe EI, Ruud GA et al. Health-related quality of life and unmet healthcare needs in Huntington´s disease. Health Qual Life Outcomes 2017; 15 (1): 6. doi: 10.1186/s12955-016-0575-7.

7. van Walsem MR, Howe EI, Iversen K et al. Unmet needs for healthcare and social support services in patients with Huntington’s disease: a cross-sectional population-based study. Orphanet J Rare Dis 2015; 10: 124. doi: 10.1186/s13023-015-0324-8.

8. Siegert R, Jackson DM, Turner-Stokes L. The Needs and Provision Complexity Scale: a first psychometric analysis using multicenter data. Clinical Rehab 2014; 28 (7): 687–695. doi: 10.1177/0269215513513601.

9. Anderson F. Downing GM, Hill J et al. Palliative Performance Scale (PPS): a new tool. J Palliat Care 1996; 12 (1): 5–11.

10. Ho F, Lau F, Downing MG et al. A reliability and validity study of the Palliative Performance Scale. BMC Palliat Care 2008; 7: 10.

11. Česká společnost paliativní medicíny. [online]. Dostupné z URL: https: //www.paliativnimedicina.cz/.

12. Mahoney FI, Barthel D. Functional evaluation: the Barthel Index. Maryland State Med J 1965; 14: 56–61.

13. Terwee, CB, Bot SD, De Boer MR et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin epidemiol 2007; 60 (1): 34–42. doi: 10.1016/j.jclinepi.2006.03.012.

14. Peterson, Robert A. A meta-analysis of Cronbach´s coefficient alpha. J Consumer Res 1994; 21 (2): 381–391. doi: 10.1086/209405.

15. Streiner DL, Norman GR. Health measurement scales: a practical guide to their development and use. 5th ed. New York: Oxford University Press 2015.

16. Hancock GA, Woods B, Challis D et al. The needs of older people with dementia in residential care. Int J Geriatr Psychiatry 2006; 21 (1): 43–49. doi: 10.1002/gps.1421.

17. Bakker C, de Vugt ME, van Vliet D et al. Unmet needs and health-related quality of life in youngonset dementia. Am J Geriatr Psychiatry 2014; 22 (11): 1121–1130. doi: 10.1016/j.jagp.2013.02.006.

18. So WK, Chan CW, Choi KC et al. Perceived unmet needs and health-related quality of life of Chinese cancer survivors at 1 year after treatment. Cancer Nurs 2013; 36 (3): E23–E32. doi: 10.1097/NCC.0b013e318263f28e.

19. Srp M, Gál O, Konvalinková R et al. Fyzioterapie u Parkinsonovy nemoci v České republice. Cesk Slov Neurol N 2018; 81/114 (2): 194–198. doi: 10.14735/amcsnn 2018194.

20. Strádalová P, Štourač P, Králíčková Nekvapilová E. Ochranné faktory kognitivního deficitu u roztroušené sklerózy. Cesk Slov Neurol N 2018; 81/114 (1): 24–28. doi: 10.14735/amcsnn201824.

21. Pechová D, Čermáková M, Kozáková R et al. Metodika aplikace sociálně zdravotní péče realizované prostřednictvím center. Praha: Česká asociace pečovatelské služby, zapsaný spolek 2019: 9–14.

22. Mareš J. Péče zaměřená na pacienta: obecné aspekty a terminologické problémy. Prakt lék 2017; 97 (3): 99–108.

23. Mareš J. Znalost zvláštností pacienta: důležitý předpoklad individualizované péče. Ceskoslov Psych 2019; 63 (6): 676–690.